I am the happy father of two boys, the youngest of whom is carrying a gene mutation GRIN2B. I had to wait 3 years in a medical desert to get this diagnosis for my son Arthur. The endless waiting and the feeling of loneliness linked to rare diseases motivated me to invest in the creation of the association GRIN2B Europe. I come from France and work as an engineer in a university acoustics laboratory.
With my wife, we love to travel, discover new landscapes, new cultures, and we look forward to sharing this passion with our children.